Ton s was making it overwhelming at times I needed to take a breather as it was so emotionally draining feeling the sorrow for those who were treated in previous generations No one knew any better but I felt for people I had never met knowing how hard it is to cope with HD even in this day and ageI went away from the book for a ittle while then came back to it with a revived interest and was able to finish it I m very glad I gave it another go and was able to be enlightened as the story does need to be read Although I got bogged down early in the perhaps overly detailed genealogy of some of the early American families with Huntington s disease I m glad I stuck with it I can recommend it to those interested in the histories of neurology psychiatry and human genetics including the eugenics movement in 19th and 20th century America This book wasn t uite what I wanted it to be I think the book I wanted may be the author s first book on Huntington s which she hints was autobiographicalIt was still reasonably interesting and it made me re examine my belief that people with Huntington s shouldn t have kidsIt was interesting to me that the author cites feminism as an inspiration in the writing of the book it was sometimes jarring that masculinity is cited as a character aspiration in a fairly neutral way and male is inserted in place. Huntington’s chorea as a clinical entity; and the early twentieth century transformation of this disorder into a cautionary eugenics tale In our own era of expanding genetic technologies this history offers insights into the social contexts of medical and scientific knowledge as well as the Soft Focus legacy of eugenics in shaping both the knowledge and theived experience of this disease.
I m at the time of my Alien Chastity Belt life where I read books that I think that Il enjoy versus the time in college where I had to read books there is no earthly way I d even consider casting my eyes over Armed with fantastic reviews fueling great anticipation I dove into Alice Wexler s The Woman Who Walked Into the Sea While I found i This book focuses on Huntington s Disease in the Eastern US with forays into historical accounts of the disease from antiuity etc It also focuses on the social effects the disease had on families broadly from the 1790s to the current day with special attention paid to the effect of the eugenics movement interesting at first then too detailed on the families of new england didn t finish My best friend is in the Faker later stages of HD I ve known him since he was in hisate twenties and had no symptoms He s married and has two daughters who are at risk I read as much as I possibly can on this disease in order to understand as much as possible about it without having a medical degree This book has helped me in exactly that way The family historiesWhile some people commenting found them to be boringwere key to understanding how we ve grown as a society both in medicine and in the general public with regards to our perceptions of people and families with HD I found this book to be helpful well researched and informa. When Phebe Hedges a woman in East Hampton New York walked into the sea in 1806 she made visible the historical experience of a family affected by the dreaded disorder of movement mind and mood her neighbors called StVitus's dance Doctors ater spoke of Huntington’s chorea and today it is known as Huntington's disease This book is the first history of Huntington’s in America S.
Tive At first I was intimidated by the prospect of reading a medical book but Wexler does a fine job of detailing a sociological history of Huntington s Disease without being bogged down in medical jargon This book gave me some excellent insight to the disease that has haunted my family for generations Wonderful book about the rise and spread of Huntington s disease How people came to recognize it as a genetic disorder after passing it off for generations watching family members suffer with what they called St Vitus Dance Essentially this book is a social and historical ook at Huntington s disease primarily in the US The focus narrows even on Dr Huntington and the family in his community that had St Vitus dancemegrumshereditry chorea It talks about the confluence about ideas of hereditry neurology and the practice of community medicine A HIPPO IN THE GARDEN later chapter on eugenics reminds how an understanding of genetics can be used for ugly purposes Very interesting to get the history of Huntington s disease and background behind why George Huntington came to see a connection between the symptoms from observing those in his home townhis father s practiceI knocked off a star as it took me a while to get into it as there is so much to digest To be fair though Perhaps I found it hard to read initially where my personal involvement with Hunting. Tarting with theife of Phebe Hedges Alice Wexler uses Huntington’s as a Spinal Trauma lens to explore the changing meanings of heredity disability stigma and medical knowledge among ordinary people as well as scientists and physicians She addresses these themes through three overlapping stories theives of a nineteenth century family once said to belong to the disease”; the emergence of.